Readers of this column know that I often write candidly about family situations and experiences.
Just last month I trekked to cold and snowy Boston to care for my sister. She is ill with a chronic disease. There is much I’d like to write about her situation.
For example, there’s the financial impact of a disease whose treatment requires a drug that costs $3,000 per month. Or the dynamics of living with a condition that forces the patient to be homebound, prompting other family members to assume new roles. Or the critical reliance by the patient on an array of medications, despite a desperate wish to be off all of them.
I want to write that column— but I’m hindered by the feeling that my sister would be embarrassed. I